As I posted back in November, continually generating content for the blog has gotten to be too much of a burden. While I am committed to updating you on any changes in my life (or, perhaps, lack of changes) relative to my story in Beating the Dementia Monster, I don't plan on commenting anymore about Alzheimer's news. But I am hearing from folks wondering why I've been so quiet -- it's because nothing is really happening.
I am in a whole slew of research studies, and I get some feedback from them. I recently had one MRI and one amyloid PET scan. I'm supposed to have a tau PET scan sometime, but they haven't scheduled it yet. It's been several months since the PET scan, and a month or two since the MRI. They are in no rush to give me any feedback, so I don't expect to hear from them for some time yet. But, based on my results from 2022 and how well I feel, I don't expect any surprises. But I'll post when I do hear back.
When I told my neurologist in Seattle that I didn't see the point in coming back to her, she asked me to continue, but relax to coming once in three years. So this fall will make 3 years. That will include the full suite of psychometric testing. I'll share the outcome of that.
Along with the MRI, I did have a scaled back -- but still intense -- set of psychometric tests. Because it's for research, they don't tell me the results. But I've taken enough of these to be able to tell when I've done well. And I'm sure I did fine.
So Amy and I make it to the gym most days. We attend to our diets and stay socially active. My biggest problem is sleep, and I'm lucky to get 5 and a half hours. But my Fitbit tells me that I'm usually getting at least an hour of deep sleep. As we said in Beating the Dementia Monster, deep sleep is most critical for Alzheimer's prevention and treatment.
If anything exciting happens, I'll post here.
